图书情报工作 ›› 2022, Vol. 66 ›› Issue (4): 23-32.DOI: 10.13266/j.issn.0252-3116.2022.04.003

所属专题: 面向重大公共卫生事件的智库建设与开放数据治理

• 专题:面向重大公共卫生事件的智库建设与开放数据治理 • 上一篇    下一篇

重大突发公共卫生事件驱动的医疗数据开放治理模式研究

李嘉兴1, 王雷2, 宋士杰3, 朱庆华2   

  1. 1. 南京农业大学信息管理学院 南京 210095;
    2. 南京大学信息管理学院 南京 210023;
    3. 河海大学商学院 南京 211100
  • 收稿日期:2021-10-07 修回日期:2021-12-15 出版日期:2022-02-20 发布日期:2022-03-01
  • 通讯作者: 朱庆华,教授,博士生导师,通信作者,E-mail:qhzhu@nju.edu.cn
  • 作者简介:李嘉兴,讲师,博士;王雷,博士研究生;宋士杰,讲师,博士。
  • 基金资助:
    本文系国家自然科学基金面上项目"社交媒体环境下失真健康信息的传播机制与协同治理研究"(项目编号:72174083)研究成果之一。

Research on Open Governance Model for Healthcare Data Driven by Major Public Health Emergencies

Li Jiaxing1, Wang Lei2, Song Shijie3, Zhu Qinghua2   

  1. 1. School of Information Management, Nanjing Agricultural University, Nanjing 210095;
    2. School of Information Management, Nanjing University, Nanjing 210023;
    3. Business School, Hohai University, Nanjing 211100
  • Received:2021-10-07 Revised:2021-12-15 Online:2022-02-20 Published:2022-03-01

摘要: [目的/意义] 通过深入探析重大突发公共卫生事件医疗数据开放共享过程,为我国重大突发公共卫生事件数据治理构建一种多主体协同参与的医疗数据开放治理模式。[方法/过程] 采用文献调研和网络调查相结合的方法,全面梳理国内外重大公共卫生事件医疗数据开放模式的研究现状和现存障碍,从解决实际问题的角度提出治理方案。[结果/结论] 通过明确重大突发公共卫生事件医疗数据开放原则,分解数据开放共享过程,提出对重大突发公共卫生事件下医疗数据开放共享进行分阶段治理的模式,并制定相关配套保障机制,最终提出一套切实可行的面向重大突发公共卫生事件的医疗数据开放治理模式。

关键词: 重大突发公共卫生事件, 健康大数据, 数据开放, 数据治理模式

Abstract: [Purpose/significance] Through an in-depth analysis of the process of the healthcare data opening and sharing in major public health emergencies, this paper proposes an open governance model of healthcare data with the collaboration participation of multiple subjects for data governance of major public health emergencies in China.[Method/process] By using a combination of literature research and Internet surveys, this study comprehensively reviewed the current research status and existing obstacles of healthcare data opening models for major public health emergencies at home and abroad, and proposed governance solutions from the perspective of solving practical problems.[Result/conclusion] By clarifying the principles of healthcare data opening for major public health emergencies, this study decomposes the process of data opening and sharing, conducts staged governance model of healthcare data opening and sharing under major public health emergencies, and formulates relevant supporting security mechanisms. Finally, this study proposes a practical governance model of healthcare data opening in major public health emergencies.

Key words: major public health emergencies, healthcare big data, data opening, data governance model

中图分类号: