A Review of Related Overseas Research on Consumer Health Informatics

  • Tang Feng ,
  • Fang Xiangming
Expand
  • 1. Intelligence and Archival Science Departmentof Shanghai University, Shanghai 200444;
    2. Shanghai University Library, Shanghai 200444

Received date: 2017-06-16

  Revised date: 2017-09-12

  Online published: 2018-01-20

Abstract

[Purpose/significance] Consumer health informatics, as an emerging international discipline, is rapidly spreading in developed countries, such as Europe and United States. This paper focuses on the research status of consumer health informatics from its birth to today. The paper makes some recommendations about future research trends on the basis of review, and provides reference for the development of consumer health informatics in our country.[Method/process]This paper summarizes the literature on consumer health informatics at home and abroad in recent years, mainly analyzes research papers, main opinion papers, conference papers and so on, related topics in Web of Science, Science Direct and Scopus.[Result/conclusion]Although the research results on consumer health informatics are fruitful, but the definition of consumer health informatics is not yet unified, most of researches are "staying" in the application of technology.

Cite this article

Tang Feng , Fang Xiangming . A Review of Related Overseas Research on Consumer Health Informatics[J]. Library and Information Service, 2018 , 62(2) : 144 -152 . DOI: 10.13266/j.issn.0252-3116.2018.02.019

References

[1] 陈怡帆,任慧玲,孙奇.国外公众健康信息学发展研究[J]. 生物信息学,2014(2):146-150.
[2] 裴雨晨,张堃,杨进,等. 浅谈用户健康信息学的现状及设想[J]. 基因组学与应用生物学,2014(4):930-934.
[3] 兰小筠,梁昌标.用户健康信息学的起源与概念[J].当代医学,2009(16):16-17.
[4] 管鹏程,许蓉,雷健波.消费者健康信息学的发展和进程[J].中国数字医学,2011(2):70-71.
[5] 彭淡,严莉,朱红,等.美国用户健康信息学教育模式探析[J].医学信息学杂志,2011(32):12-15.
[6] 高善强,贺英,王珊珊.美国健康信息学技术的发展现状及作用[J].中国医学创新,2016(13):135-137.
[7] 张鸣明,刘雪梅.循证医学与用户健康信息学[J].医学与哲学,2002(23):40-41.
[8] MISSER E, BELL S. Why we cite sources in academic papers[EB/OL].[2017-07-09].http://www.wlu.ca/writing.
[9] FERGUSON T.Consumer health informatics[J].Health forum journal,1995,12(1):28-33.
[10] THORNTON K.Directions and opportunities in health informatics in British Columbia[J].Medthods of information in medcine,1994,33(3):299-301.
[11] United States General Accounting Office.Consumer health informatics:emerging issues[EB/OL].[2017-06-14].http://onlinebooks.library.upenn.edu/webbin/book/lookupname?key=United%20States%2E%20General%20Accounting%20Office.
[12] RHODES E.Consumer informatics:Helping patients to access health information via the Internet[J].Nursing connections,2000,13(1):33-42.
[13] MANTAS J. Education and consumer health informatics[J].IMIA yearbook of medical informatics, 2007,7(9):90-94.
[14] AMIA. Public health informatics[EB/OL].[2017-07-09].http://www.amia.org/applications-informatics/public-health-informatics.
[15] HOUSTON T, CHANG B, BROWN S,et.al. Consumer health informatics:a consensus description and commentary from American Medical Informatics Association members.[EB/OL].[2017-07-09].https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2243697/.
[16] HOUSTON T, EHRENBERGER E. The potential of consumer health informatics[J]. Seminars in oncology nursing, 2001,17(1):41-47.
[17] EYSENBACHG.Consumer health informatics[J].British medical journal,2000,320(7251):1713-1716.
[18] GIUSTINI D. How Web 2.0 is changing medicine-is a medical wikipedia the next step?[J].British medical journal, 2006,302(12):1283-1284.
[19] STAGGERS N, THOMPSON C. The evolution of definitions for nursing informatics:a critical analysis and revised definition[J].Journal of the American Medical Informatics Association,2002,9(3):255-261.
[20] GUSTAFSON D, HAWKINS R, BOBERG E, et.al.CHESS:10 years of research and development in consumer health informatics for broad populations, including the underserved[J]. International journal of medical informatics,2002,65(3):169-177.
[21] 克利夫兰,潘雪群,陈江萍.健康信息需求分析及相关网络资源的使用——对达拉斯福和地区华人的调查[J].图书情报工作,2008,52(3):112-116.
[22] AROCHA J, HOFFMAN-GOETZ L.A survey of public health and consumer health informatics programmes and courses in Canadian universities and colleges[J].Informatics for health and social care,2012,37(4):242-252.
[23] AMYA.Consumer health informatics:improving patient engagement[EB/OL].[2017-06-13].https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3717690/.
[24] MILNE D.An empirical definition of clinical supervision[J].British journal of clinical psychology, 2007,46(4):437-447.
[25] MISSER E, BELL S. Why we cite sources in academic papers[EB/OL].[2017-06-29]. http://www.wlu.ca/writing.
[26] MCDANIEL A,SCHUTTER D, KELLER L.Consumer health informatics:from genomics to population health[J]. Nursing outlook, 2008, 56(5):216-223.
[27] The International Medical informatics Association.Consumer health informatics[EB/OL].[2017-06-04].https://en.wikipedia.org/wiki/Consumer_health_informatics.
[28] The American Medical Informatics Association.Consumer health informatics[EB/OL].[2017-06-04].https://www.amia.org/applications-informatics/consumer-health-informatics.
[29] EDWARD H,JAMES J. Biomedical informatics:computer applications in health care and biomedicine[EB/OL].[2017-06-04].http://www.springer.com/us/book/9781447144731.
[30] RATZAN S, PARKER R. National Library of Medicine current bibliographies in medicine:health literacy[EB/OL].[2017-09-07].https://www.researchgate.net/publication/230877250_National_Library_of_Medicine_Current_Bibliographies_in_Medicine_Health_Literacy.
[31] GUNTHER E, THOMAS L.The role of e-health and consumerhealth informaticsfor evidence-based patient choice in the 21st century[J].Clinics in dermatology,2001,19(1):11-17.
[32] NTON B, NEISON R.Literacy, consumer informatics, and health care outcomes:interrelations and implications[EB/OL].[2017-09-09].https://scholar.google.com/scholar?q=consumer+informatics,+and+health+care+outcomes:+interrelations+and+implications%5B&hl=zh-CN&as_sdt=0&as_vis=1&oi=scholart&sa=X&ved=0ahUKEwjf06e_wfrXAhVQymMKHZENAowQgQMIJTAA.
[33] MICHAEL C,GIBBONS R,WILSON F. Consumer health informatics:results of a systematicevidence review and evidence based recommendations[J].Translational behavioral medicine,2011,1(1):72-82.
[34] TYNER K. Literacy in a digital world. Mahwah[EB/OL].[2017-09-07].https://quod.lib.umich.edu/j/jahc/3310410.0002.317/-kathleen-tyners-literacy-in-a-digital-world-teaching?rgn=main;view=fulltext.
[35] American Library Association Presidential Committee on Information Literacy[EB/OL].[2017-06-09].http://www.ala.org/ala/acrl/acrlpubs/whitepapers/presidential.htm#opp.
[36] FEUERSTEIN M. Media literacy in support of critical thinking[J]. Educational media, 1999,24(1):43-54.
[37] American Medical Association.Health literacy:report of the Council on Scientific Affairs, Hoc Committee on Health Literacy for the Council on Scientific Affairs[EB/OL].[2017-06-19].https://www.ncbi.nlm.nih.gov/pubmed/10022112.
[38] LBOGAN R. The fifth language:learning a living in the computer age[EB/OL].[2017-06-09].https://link.springer.com/article/10.1023/A%3A1007428809277.
[39] LAUGKSCH R. Scientific literacy:a conceptual overview[J].Science education, 2000,84(1):71-94.
[40] BRAIN J.Consumer health education[EB/OL.[2017-06-15].https://www.slideshare.net/senohj/consumer-health-education-mapeh.
[41] MARSCHOLLEKM.Advances in education and consumer health informatics[J].IMIA yearbook of medical informatics,2000,39(3):267-277.
[42] MARSCHOLLEK M.Methods to meet the informational demands of patients and health professionals. Findings from the section on education and consumer informatics[EB/OL].[2017-09-09].https://www.ncbi.nlm.nih.gov/pubmed/17051301.
[43] MBANANG N,MNIKI S,ONELOFSE A.A model of developing medical terms in indigenous languages:a step towards consumer health informatics in South Africa[J].Medical informatics,2004,1(2):121-128.
[44] WOLPIN S, BERRY D. Improving health literacy:a Web application for evaluating text-to-speech engines[J]. CIN-Computers informatics nursing,2010,28(4):198-204.
[45] FABRICE J,ANTONIO A,BENICE S. Patient education as empowerment and self-rebiasing[J]. Medical health care and philosophy, 2016,19(4):553-561.
[46] DOYLE G.A faculty peer network for integrating consumer health solutions in nursing education:contextual influences and perspectives[EB/OL].[2017-09-08].https://www.ncbi.nlm.nih.gov/pubmed/27332275.
[47] STACCINI P, DOUAIL N.Evidence-based practice,findings from the section on education and consumer health informatics[EB/OL].[2017-09-07]. http://europepmc.org/abstract/med/23974566.
[48] 李英英,王惠临.国外消费者健康信息服务工具现况与启示[J].医学与社会,2013(7):13-16.
[49] RHODES E. Consumer informatics:helping patients to access health information via the Internet[J].Nursing connections,2000,13(1):33-42.
[50] GUSTAFSON D, HAWKINS R, BOBERG E, et al.CHESS:10 years of research development in consumer health informatics for broad population[J].International journal of medical informatics,2002,65(3):169-177.
[51] EASS D,MCCⅡENDON M,BERENNAN P.The buffering effect of a computer support network on caregiver strain[J]. Aging health,1998,10(1):20-43.
[52] BOUTHADDOU O,LAMBERT J,MILLER S. Consumer health informatics:knowledge engineering and evaluation studies of medical House Call[EB/OL].[2017-09-07].http://pubmedcentralcanada.ca/pmcc/articles/PMC2232376/pdf/procamiasymp00005-0646.pdf.
[53] The American Medical Informatics Association.Consumer health informatics[EB/OL].[2017-04-08].http://www.amia.org/applications-informatics/consumer-health-informatics.
[54] BOSWORTH A, YORK C,KOTANSKY H, et al.An inventor's perspective on consumer health informatics[J]. American journal prevention medical, 2011,40(5):241-244.
[55] ALLA K, ROBBERT L. Developing informatics tools and strategies for consumer-centered health communication[J].Journal of the American Medical Informatics Association,2008,15(4):473-483.
[56] MISRA R,MARK J,KHAN S, et al. Usingdesign principles to foster understanding of complex health concepts in consumer informatics tools[J]. AMIA symposium,2010,11(13):492-496.
[57] JUNG M.Consumer health informatics:promoting patient self-care management of illnesses and health[J].Health care manager,2016,35(4):312-320.
[58] RYAN D, COBERN W,WHEELER J, et.al. Mobile phone technology in the management of asthma[J]Journal of telemedicine and telecare, 2005,11(1):43-46.
[59] SAHA S. Impact factor:a valid measure of journal quality?[J].Journal of the Medical Library Association,2003,91(1):42-46.
[60] Science and Applications of the latent semantic analysis group at University of Colorado at Boulder[EB/OL].[2017-09-07].http://lsa.colorado.edu/.
[61] SEGLEN P. Why the impact factor of journals should not be used for evaluating[J].British medical journal,1997,314(7079):498-502.
[62] SHAIKH A, PRABHU D, VINSON C,et.al.Cyberinfrastructure for consumer health[J].American journal of preventive medicine,2011,40(5):91-96.
[63] GIBBONS M, WILSON R, SAMALL, etal. Impact of consumer health informatics application[EB/OL].[2017-07-09].https://www.ahrq.gov/downloads/pub/evidence/pdf/chiapp/impactchia.pdf.
[64] GIBBONS M, WILSON R, SAMAL L, et al.Consumer health informatics:result of a systematic evidence review and evidence based recommendations[J].Translate behavior medical,2011,1(1):72-82.
[65] MORY, N. Culture, politics and ergonomics[J].Ergonomics, 2000,43(7):858-868.
[66] RAU P, SALVENDY G. A cross cultural study on knowledge representation and structure in human computer interfaces[J].International journal of industrial ergonomics, 2004,3(34):117-129.
[67] ANNE M, JUDITH G, PATRICIA F.Cross-cultural factors necessary to enable design of flexible consumer health informatics systems[EB/OL].[2017-09-09].http://www.sciencedirect.com/science/article/pii/S1386505606001341.
[68] El-TONBGUI M, GREGORY J.Cross-cultural cooperation in designing information resources[EB/OL].[2017-02-02].https://link.springer.com/chapter/10.1007/978-3-322-94954-7_7.
[69] FORSYTHE D. Studying those who study us:an anthropologist in the world of artificial intelligence[D].Stanford:Stanford University Press,2009:251-276.
[70] FRIEDMAN C. Information technology leadership in academic medical centers:a tales of 4 cultures[J].Academy medical, 1999,74(7):795-799.
[71] SONG H,OMORI K, KIM J, et al.Trusting social media as a source of health information:online surveys comparing the United States, Korea, and Hong Kong[J].Journal of medical internet research,2016,18(3):25.
[72] FLAHERTY D,HOFFMA-GONETZ L,AROCHA J.What is consumer health informatics? A systematic review of published definitions[J].Informatics for health and social care,2015,40(3):91-112.
[73] STATISTICS C. Online activities of home Internet users[EB/OL].[2017-07-09].http://www.statcan.gc.ca/daily-quotidien/100510/t100510a2-eng.htm.
[74] FOX S, RAINE L. Vital decisions:how internet users decide what information to trust when they or their loved ones are sick:Pew Internet & American Life Project[EB/OL].[2017-07-09]. http://www.pewinternet.org/2002/05/22/vital-decisions-a-pew-internet-health-report/.
[75] FOX S, JONES S. The social life of health information[EB/OL].[2017-07-09]. http://www.pewInternet.org/Reports/2009/8-The-Social-Life-of-Health-Information.aspx.
[76] HOUSTON T, EHRENBERGER H.The potential of consumer health informatics[J]. Seminars in oncology nursing,2001,17(1):41-47.
[77] HOFFMAN-GONETZ L, CLARKEJ.Quality of breast cancer sites on the World Wide Web[J].Canadian journal of public health,2001, 91(4):281-284.
[78] HONFFMAN-GOETZ L, FRIEDMAN D, CELESTINE A. Evaluation of a public library workshop:teaching older adults how to search the Internet for reliable cancer information[J].Journal of consumer health on the Internet,2006,10(3):29-43.
[79] DAVIDF.Evaluation of consumer health informatics definitions:a systematic review of the peer-reviewed literature[EB/OL].[2017-07-09]. https://uwspace.uwaterloo.ca/bitstream/handle/10012/8324/Flaherty_David.pdf?sequence=3.
[80] AMANDA K,JAY M,VIRGINIA D,et.al.The digital health divide:evaluating online health information access and use among older adults[J].Healthy education behavior,2015,42(2):202-209.
[81] MOORE Q,RICHARDS-KORTUN R. Digital health devices are great, but their prices are widening the health gap[EB/OL].[2017-07-20]. http://theconversation.com/digital-health-devices-are-great-but-their-prices-are-widening-the-health-gap-63380.
[82] HALLA,BERNHARDT J,DODD V,et al. The digital health divide:evaluating online health information access and use among older adults[EB/OL].[2017-07-09].https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4405138/.
[83] LUSTRIA M, SMITH S, HINNANT C. Exploring digital divides:an examination of eHealth technology use in health information seeking, communication and personal health information management in the USA[J].Health informatics journal, 2011,17(3):224-243.
Outlines

/