Research on the Characteristics and Behavior Patterns of Surrogate Health Information Seekers in China Under the Internet Environment

  • Song Xiaokang ,
  • Zhao Yuxiang ,
  • Song Shijie ,
  • Zhu Qinghua
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  • 1 School of Management and Engineering, Nanjing University, Nanjing 210093;
    2 School of Economics and Management, Nanjing University of Science and Technology, Nanjing 210094;
    3 School of Information Management, Nanjing University, Nanjing 210023

Received date: 2020-05-11

  Revised date: 2020-07-13

  Online published: 2020-11-20

Abstract

[Purpose/significance] Using the Internet to seeking health information on behalf of others has become an important form of health information support for non-medical professionals.Understanding the characteristics and behavior patterns of surrogate health information seekers will be of positive significance to health information service and communication.[Method/process] In this paper, three aspects of individual characteristics of the participants were investigated, including demographic variables, health information seeking experience related variables and family structure related variables. And based on the 5W(Why-Who-When-Where-What) perspective, we analyzed the behavior patterns of surrogate health information seekers.In addition to semi-structured interview on why, other variables were measured by questionnaire.[Result/conclusion] The study found that 87.0% of online health information seekers had the surrogate health information seeking experience in the past 12 months. Surrogate health information seekers' characteristics includingfemale, only child, married, in good health condition, rich experience in online health information seeking, and family members with chronic diseases.The motivations of surrogate health information seekers include caring, altruism, etc. They are more likely to help people with strong social ties seeking for health information. Surrogate health information seekers help patients seeking health information online before they go to hospital. Surrogate health information seekers' information sources mainly include search engines, online health communities and online Q&A communities.They need more general information related to specific diseases, daily health care and treatment related information.

Cite this article

Song Xiaokang , Zhao Yuxiang , Song Shijie , Zhu Qinghua . Research on the Characteristics and Behavior Patterns of Surrogate Health Information Seekers in China Under the Internet Environment[J]. Library and Information Service, 2020 , 64(22) : 107 -117 . DOI: 10.13266/j.issn.0252-3116.2020.22.011

References

[1] EYSENBACH G. Consumer health informatics[J]. BMJ, 2000, 320(7251):1713-1716.
[2] 宋士杰, 赵宇翔, 宋小康,等. 互联网环境下失真健康信息可信度判断的影响因素研究[J]. 中国图书馆学报, 2019, 45(4):72-85.
[3] RAMSEY I, CORSINI N, PETERS M D J, et al. A rapid review of consumer health information needs and preferences[J]. Patient education and counseling, 2017, 100(9):1634-1642.
[4] FERNÁNDEZ-LUQUE L, BAU T. Health and social media:perfect storm of information[J]. Healthcare informatics research, 2015, 21(2):67-73.
[5] BECK F, RICHARD J B, NGUYEN-THANH V, et al. Use of the Internet as a health information resource among French young adults:results from a nationally representative survey[J]. Journal of medical Internet research, 2014, 16(5):e128.
[6] 闫慧. 数字鸿沟研究的未来:国外数字不平等研究进展[J]. 中国图书馆学报, 2011, 37(4):87-93.
[7] 赵宇翔. 数字悟性:基于数字原住民和数字移民的概念初探[J]. 中国图书馆学报, 2014, 40(6):43-54.
[8] ABRAHAMSON J A, FISHER K E, TURNER A G, et al. Lay information mediary behavior uncovered:exploring how nonprofessionals seek health information for themselves and others online[J]. Journal of the Medical Library Association, 2008, 96(4):310-323.
[9] RICHARDSON K, BARKHAM M. Recovery from depression:a systematic review of perceptions and associated factors[J]. Journal of mental health, 2020, 29(1):103-115.
[10] REIFEGERSTE D, BLECH S, DECHANT P, et al. Understanding information seeking about the health of others:applying the comprehensive model of information seeking to proxy online health information seeking[J]. Journal of health communication, 2020, 25(2):126-135.
[11] SADASIVAM R S, KINNEY R L, LEMON S C, et al. Internet health information seeking is a team sport:analysis of the Pew internet survey[J]. International journal of medical informatics, 2013, 82(3):193-200.
[12] 宋小康, 赵宇翔, 朱庆华. 互联网环境下国外健康信息替代搜索研究的回顾与展望[J]. 情报理论与实践, 2020, 43(3):169-176.
[13] CUTRONA S L, MAZOR K M, VIEUX S N, et al. Health information-seeking on behalf of others:characteristics of "surrogate seekers"[J]. Journal of cancer education, 2015, 30(1):12-19.
[14] REIFEGERSTE D, BACHL M, BAUMANN E. Surrogate health information seeking in Europe:influence of source type and social network variables[J]. International journal of medical informatics, 2017, 103:7-14.
[15] FOX S. The social life of health information[EB/OL].[2020-04-15].https://www.pewresearch.org/internet/2011/05/12/health-topics/.
[16] SONG X, SONG S, CHEN S, et al. Factors influencing proxy Internet health information seeking among the elderly in rural China:a grounded theory study[C]//International conference on human-computer interaction.Cham:Springer, 2019:332-343.
[17] MCKENZIE P J. A model of information practices in accounts of everyday-life information seeking[J]. Journal of documentation, 2003, 59(1):19-40.
[18] ZHANG Y. Beyond quality and accessibility:source selection in consumer health information searching[J]. Journal of the Association for Information Science and Technology, 2014, 65(5):911-927.
[19] WARING M E, MCMANUS D D, AMANTE D J, et al. Online health information seeking by adults hospitalized for acute coronary syndromes:who looks for information, and who discusses it with healthcare providers?[J]. Patient education and counseling, 2018, 101(11):1973-1981.
[20] OH Y S. Predictors of self and surrogate online health information seeking in family caregivers to cancer survivors[J]. Social work in health care, 2015, 54(10):939-953.
[21] FISHER K E, ABRAHAMSON J A, TURNER A G, et al. Lost, found, and feeling better:exploring proxy health information behavior[EB/OL].[2020-04-15]. https://asistdl.onlinelibrary.wiley.com/doi/epdf/10.1002/meet.14504201258.
[22] MOREY O T. Proxies, ties and health information seeking realities:survey results of an African-American community[J]. Proceedings of the American Society for Information Science and Technology, 2006, 43(1):1-6.
[23] MANAFO E, WONG S. Exploring older adults' health information seeking behaviors[J]. Journal of nutrition education and behavior, 2012, 44(1):85-89.
[24] 李月琳, 蔡文娟. 国外健康信息搜寻行为研究综述[J]. 图书情报工作, 2012, 56(19):128-132.
[25] WILSON T. On user studies and information needs[J]. Journal of documentation, 1981, 37(1):3-15.
[26] JOHNSON J D, MEISCHKE H. A comprehensive model of cancer-related information seeking applied to magazines[J]. Human communication research, 1993, 19(3):343-367.
[27] ZHENG Y. Patterns and motivations of young adults' health information acquisitions on Facebook[J]. Journal of consumer health on the Internet, 2014, 18(2):157-175.
[28] CUTRONA S L, MAZOR K M, AGUNWAMBA A A, et al. Health information brokers in the general population:an analysis of the health information national trends survey 2013-2014[J]. Journal of medical Internet research, 2016, 18(6):e123.
[29] REIFEGERSTE D, CZERWINSKI F, ROSSET M, et al. Demographic and cancer-related differences between self-seeking patients and supported patients:analysis of cancer information-service data[J]. Psycho-oncology, 2019, 28(4):759-766.
[30] 施亦龙, 许鑫. 在线健康信息搜寻研究进展及其启示[J]. 图书情报工作, 2013,57(24):125-133.
[31] RUTTEN L J F, ARORA N K, BAKOS A D, et al. Information needs and sources of information among cancer patients:a systematic review of research (1980-2003)[J]. Patient education and counseling, 2005, 57(3):250-261.
[32] PIAN W, KHOO C S, CHI J. Automatic classification of users' health information need context:logistic regression analysis of mouse-click and eye-tracker data[J]. Journal of medical Internet research, 2017, 19(12):e424.
[33] LI H. Informal caregivers' use of the internet for caregiving information[J]. Social work in health care, 2015, 54(6):532-546.
[34] 童辉杰, 宋丹. 我国家庭结构的特点与发展趋势分析[J]. 深圳大学学报(人文社科版), 2016, 33(4):118-123.
[35] RAMIREZ A S, LEYVA B, GRAFF K, et al. Seeking information on behalf of others:an analysis of calls to a Spanish-language radio health program[J]. Health promotion practice, 2015, 16(4):501-509.
[36] CHAO Y C E, ZHAO Y, KUPPER L L, et al. Quantifying the relative importance of predictors in multiple linear regression analyses for public health studies[J]. Journal of occupational and environmental hygiene, 2008, 5(8):519-529.
[37] KINNANE N A, MILNE D J. The role of the Internet in supporting and informing carers of people with cancer:a literature review[J]. Supportive care in cancer, 2010, 18(9):1123-1136.
[38] NÖLKE L, MENSING M, KRÄMER A, et al. Sociodemographic and health-(care-) related characteristics of online health information seekers:a cross-sectional German study[J]. BMC public health, 2015, 15(1):e31.
[39] 徐俊, 风笑天. 独生子女家庭养老责任与风险研究[J]. 人口与发展, 2012, 18(5):2-10.
[40] 风笑天. 浅谈独生子女在家庭中的角色特点[J]. 学术评论, 1991(5):59-61.
[41] KIM W, KREPS G L, SHINC N. The role of social support and social networks in health information-seeking behavior among Korean Americans:a qualitative study[J]. International journal for equity in health, 2015, 14(1):e40.
[42] YEUNG T M, MORTENSEN N J. Assessment of the quality of patient-oriented internet information on surgery for diverticular disease[J]. Diseases of the colon and rectum, 2012, 55(1):85-89.
[43] KEALEY E, BERKMAN C S. The relationship between health information sources and mental models of cancer:findings from the 2005 health information national trends survey[J]. Journal of health communication, 2010, 15(3):236-251.
[44] MALONEY-KRICHMAR D, PREECE J. A multilevel analysis of sociability, usability, and community dynamics in an online health community[J]. ACM transactions on computer-human interaction, 2005, 12(2):201-232.
[45] 孙晓宁, 赵宇翔, 朱庆华. 基于SQA系统的社会化搜索答案质量评价指标构建[J]. 中国图书馆学报, 2015,41(4):65-82.
[46] 中共中央、国务院印发《"健康中国2030"规划纲要》[EB/OL].[2020-04-17]. http://www.gov.cn/zhengce/2016-10/25/content_5124174.htm.
[47] 健康中国行动推进委员会.健康中国行动(2019-2030年)[EB/OL].[2020-04-17]. http://www.gov.cn/xinwen/2019-07/15/content_5409694.htm.
[48] STAVROU V, PLOUMIS A, VOULGARIS S, et al. Informal caregivers' perceived needs for health education information and emotional support:a comparison between acute and sub-acute rehabilitation settings[J]. International journal of caring sciences, 2017, 10(1):243-250.
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